Consumer Rights
The following information was taken from Everyday Lives: Values in Action. Everyday Lives: Values in Action is available in full at the address below:
https://s3-us-west-2.amazonaws.com/palms-awss3-repository/MyODP_Content/Everyday+Lives/EDL+booklet+proof+11-1-2016.pdf
The foundation of Everyday Lives: Values In Action is two statements:
1. We value what is important to people with disabilities and their families, who are striving for an everyday life.
2. People with disabilities have a right to an everyday life; a life that is no different than that of all other citizens.
Everyday Lives: Values in Action will be a guide to the Office of Developmental Programs (ODP) as it develops policy and designs programs. Providers of services will use these recommendations to support individuals and their families to achieve everyday lives.
WHAT IS IMPORTANT TO PEOPLE WITH DISABILITIES VALUES STATEMENTS EVERYDAY LIVES IN ACTION: MY LIFE, MY WAY
1.CONTROL: I have control over all areas of my life. My family, supporters, and community know these are my decisions and work with me to achieve greater control.
2. CHOICE: I decide everything about my life. My family, supporters, and community help me learn about opportunities and together we make them happen.
3.FREEDOM: I have the same rights as all other members of the community and I can fully use them. My family, supporters, and community respect my rights
4 STABILITY: Changes to my life are made only with my permission and input. My family, supporters, and community do “nothing about me without me.” They plan with me to meet my needs, now and for the future.
5. EMPLOYMENT/MEANINGFUL CONTRIBUTION: I want to work and/or have other ways to contribute to my community. My family, supporters, and community support me to find and keep a real job that I like with good wages and benefits or start and run my own business, and/or volunteer the way I want in my community.
6. HEALTH AND SAFETY: I am healthy and safe in all areas of my life. I, my family, supporters, and community balance health, safety, and risk according to my wants and needs.
7. INDIVIDUALITY: I am respected and valued for who I am and want to be. My family, supporters, and community treat me with dignity and support me in a person-centered way.
8. CONNECTED: I am a full member of my community with respect, dignity, and status. My family, supporters, and community know me as a person, welcome and accept me.
9. RELATIONSHIPS: I decide who is in my life: friends, family, partners, neighbors, pets, and others in the community. My family, supporters, and community respect the relationships I choose and support me to form new relationships.
10. RESPONSIBILITY: I am dependable and honor my commitments. I keep my word. My family, supporters, and community are honest and fair, do what they’re supposed to do, and keep their word.
11. PARTNERSHIP: I need people in my life who will honor my life’s journey. My family, supporters, and community work together with me to build bridges.
12. COMMUNICATION: I am listened to and understood; my input is valued. My family, supporters, and community listen to me and communicate in ways that work for me.
13. QUALITY: I want my life my way. I, my family, supporters, and the community make sure the services I choose are proved to be of high quality.
14. SUCCESS: I am the best I can be in the goals that I decide. My family, supporters, and community learn how to support me to achieve my goals.
15. ADVOCACY: I am the best person to let others know what I want and need. My family, supporters, and community listen to me and understand what I want and need, and assist me to be heard by others
WHAT IS IMPORTANT TO FAMILIES VALUE STATEMENTS:
1.THE UNIQUE ROLE OF FAMILY: Families represent the very heart of life throughout the lifespan.
2.CHOICE AND CONTROL: Families seek freedom, on behalf of their family members, to make responsible and personal choices in all aspects of life.
3.SUPPORTING FAMILIES THROUGHOUT THE LIFESPAN: Our families must be encouraged and supported early on in their children’s lives to hope, dream, and reach for the future.
4.HEALTH AND SAFETY: People should be safe at home, work, school, and in the community.
5.KNOWLEDGE AND RESOURCES: Families want to feel strong so they can provide for and support their loved ones.
6.SIMPLICITY AND FLEXIBILITY: Families value a simplified and transparent system that is easy to access, understand, and navigate.
7.MENTORING: Families value mentoring as a strong component to informing and supporting families.
8.QUALITY AND STABILITY: Families value quality supports and services that enable people to live everyday lives.
9.COMMUNICATION: Good communication involves everyone working toward common goals, respecting one another in partnership.
10.COLLABORATION: Along with self advocates, family members must be part of the discussion, planning, and creation of every element of the service system.
11.RESPECT AND TRUST: Respect must be granted to families, their values and beliefs, homes, and privacy.
12. OPPORTUNITY FOR INNOVATION: Families support innovative, creative approaches that can be the key to truly person-centered solutions and often offer the most cost-efficient solutions
Source: Everyday Lives, Values in Action: July 2016